Burn Injury Resource Center

When I got home I had to get use to being there. I needed my mother to change my bandages. I attended a barbeque with friends down stairs from my grandmother house. I didn't stay very long because my back was hurting me. My shirt was stuck to my back and I could not remove the shirt. Unfortunately I was re-admitted to the hospital. The second time being there was easier than the first time. Technically it was still stressful being back in a place I was trying so hard to avoid. The only thing that needed to heal was my back. So they put a certain type of patch that went around my whole body. The patch contained some kind of medicine. The nurse never told me that I would constantly feel sharp pain. When I was in the bed I couldn't move a certain way because of the pain. The second time in the hospital I stayed by myself. That didn't bother me because I needed some time to be alone to think about how my life would be. I would read books to keep my mind off the pain. Sometimes I thought about how being burned affected my family. When I came home I still had to attend weekly visit to the doctors, physical therapy and home school. That's when they gave me my JOBST suit. A JOBST suit is a custom pressure garment. I had to wear it 23 hours a day, only taking it off when I took a shower and putting moisture on my burns. The type of lotion I used was Lubriderm. I received summer school because I had to constantly be watched. That was hard because it was just the teacher and me. But luckily I passed through out all of the pain I endured. Seeing people just like me made me feel like I was not alone. My doctors recommended burn camp so that I could meet other patients like me. Connecticut Burn Camp was life changing. I never knew that so many children were burned. Even the camp counselor shared the same experience. That was the first time I wore a bathing suit in front of friends. No one judge us because we were all burned or scared. We always asked each other to share out stories. I plan on being a camp counselor when I turn eighteen. I want to give hope to other kids and let them know that they get through this tough time.